An Unexpected Roommate
Sometime in between all of the tests and treatments to find out how soon my body needed new organs, I was told that undergoing a kidney and a liver transplant would entail clinic visits twice a week for six weeks post transplant. After a transplant, and especially of two organs, a lot of care and attention is given to make sure the body accepts the new (foreign) organs; anti-rejection medications and lab work are required for life. My heart sank. This care would mean driving 2+ hours back-and-forth from Abilene to Ft. Worth. There was no way I could do this driving because I couldn’t even walk without a walker and my car wasn’t in great shape. I honestly felt like it might be too much of a burden for my family to help me with this. I was worried about the money involved as well as the time. When I mentioned this to my social worker she told me about the Twice Blessed House. The hospital had access to six one-bedroom apartments for transplant patients in an apartment complex a few blocks from the hospital. Even though the hospital was given a good deal on the rentals, it would cost me a fair amount of money to live there for six weeks—cheaper than staying at a hotel room. I took a moment to soak all this in. Between watching TV and playing one of those dumb adventure game apps on my phone that sucks money out of you like old arcade games did, I mulled things over. What this all meant was that there was no longer a question of whether or not I was going to get a transplant, only a matter of when and what I needed to do to prepare myself for a life beyond transplant…especially immediately afterwards. I called my mom to let her know about the development. My social worker had mentioned that I must have a roommate. I told my mom that my first thought was that maybe I could stay at my friend Tim‘s place if he was OK with that. Or perhaps not for the full six weeks (he has a wife and two teenage kids), but perhaps for a couple of weeks and then may shit to someone else’s home if I could find somebody else who lived in the area. “Well, let’s think about it,” mom said. “This might take a little while or it could happen pretty quickly.” She was right. The doctors needed to run lab work for my latest MELD score to see how bad off my liver was. I was told that I would definitely be put on the list and possibly near the top. My kidneys were failing me and dialysis had become a regular occurrence. I’d had ascites for a while and paracentesis and thoracentesis were no longer very productive in draining my body of peritoneal fluid. “I’ll do it. Don’t worry about it. I’ve already talked with dad about it. I’ll come out there and stay with you after your transplant.” “Really?” “Yes, of course. You can’t be staying with Tim‘s family. You shouldn’t be worrying about any of this anyway.” “I just didn’t know what else to do. I mean I’m running so many tests and doing so many things and…” “I’ve talked with your social worker. I just need to have a background check done and then she’ll put us on the list. Let’s just pray that one of the apartments will be available after your transplant.“ My mom had been a nurse for over 30 years in Hendrick Medical Center in Abilene. She was the perfect caregiver for me. I felt so much relief knowing that on the other end of my transplant I would be taken care of. “Okay. Wow. Thanks so much, mom.” “Just think. We’ll be roommates.” “For six weeks.” “Yep.”
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Strange New World: The Awakening The day my mom saved my life she found me unconscious and shirtless on my bed in bloody vomit. She couldn’t wake me. She immediately took my blood pressure. It was incredibly low. She and dad couldn’t wake me. I was too heavy to carry to the car, so she called an ambulance.
I don’t remember that trip to the hospital. In fact, I was unconscious for over a day. I awoke to the news I had cirrhosis of the liver and double pneumonia. This happened right about the time the Covid death toll was rising, and hospitals were swamped with patients. I found out quickly what a code blue was because I heard it announced every day, multiple times, in the ICU. How was it I was in a hospital? How sick did all of this really mean? Was I going to have a code blue? In and out of consciousness, I kept thinking I should probably tell my parents I was in the hospital—that I was in a gown and there were medical people around me constantly. I thought my folks might get worried of my whereabouts as the weekend was passing. I had a phone. Right? Where’s my phone? But I didn’t panic. I just knew they needed to know. They needed to know where I was and how bewildered I was about this new state I was in. I knew it was going to be a turning point in my life if I lived through everything. What would they think about that? Was I a failure? It’s irresponsible for me to not let them know where I am, but how do I let them know where I am? I had all these thoughts and then I would pass out, wake up, and replay all these exact thoughts again. Over and over in a cycle. It was like Sisyphus but without the big rock and the sunshine. The weekend was slipping by, and I had to let my parents know where I was. Where was my phone? I had to tell them that a rubber band had been placed around my esophagus because I was bleeding and that I was wearing an oxygen mask on account of my sick lungs and that I didn’t get to eat or drink or pee on my own. I couldn’t tell from one moment to the next if I had mentioned my concerns out loud or just thought them. I don’t remember much those first few days. My speech was terrible, and I didn’t even have total recognition of this. I understood what was going on, but I was very foggy about it all. It was like some collage of hospital impressionism of images and feelings. I wasn’t allowed to eat for a while and the only water I could have initially was in the form of bits of ice. One day the nutritionist came in to test my ability to chew and swallow food. That is so bizarre. Just typing that right now. So bizarre. I could only have little bits to eat, but boy was that stuff great. The nutritionist fed me with a spoon. I had some Jell-o and something else and was about to go for the mother lode—granola. I was slowly building up through the harder things to chew then swallow, chew then swallow. Suddenly one of the nurses realized I was bleeding a little from my arm. “Stop feeding! He’s bleeding.” The nutritionist pulled the spoon away from me and slowly gathered my food. My food. Aw man! I wanted that granola like I never had before because I never had before wanted granola. But I really wanted it NOW. TODAY. I don’t remember what my first true meal was. Famished after not having eaten for probably a week, I was somehow patient about eating. I guess I started to realize I was lucky to be alive. It’s sort of complicated to explain how I felt. There was so much uncertainty about my entire life. What have I done wrong and what was I going to do and what were the repercussions for the poor mishandling of my health? There was constant attention to make sure my health improved. That kept me from worrying too much. I think the drugs helped with that as well. I had no idea I was going to be in the hospital for 24 days. I kind of just gave myself up to the hospital and lived as a patient with people taking care of my essential needs. One day some things came back to me. I remembered being wheeled into the hospital in a wheelchair and how I had to stand up and take off my clothes so I could get in a gown. I remembered my pants! They were in a hurry to get me into a room to check me out and that memory flash-forwarded me to a moment where I was awake in a gown wondering where my pants were. “They fell on the floor, I think! I really like those pants. They were corduroy or something. I can’t leave the hospital without somebody retrieving my pants.” I told my nurse or my mom…somebody…that, “I remember coming into the hospital!” and they told me I was completely unconscious when that happened. They told me I was wheeled in on a stretcher and I wasn’t stripped and placed in a gown until I got into ICU where my pants were cut free from my body and thrown away. No more of those pants. In my super-doped up state I had dreamt this memory. There was going to be a lot more of this to come. That was going to be a new facet in my life to make more appearances. Dreaming Awake. The Doodle's the Thing Doodling is fascinating to me. I liken it to the sport of soccer. Why is soccer (known globally as football) the most popular sport in the world? It’s pretty simple. All you need to play soccer is a ball and a place. A field is preferred, but it could be played on the street or in your home or in a garage--basically anywhere there’s just enough space to kick around a ball. You don’t need big goals with nets. On a field, many kids will grab sticks and lay them down to signify goals.
What do you need for doodling? All you need is something to write with and a place to write it. Pen, pencil, chalk, paint, charcoal…anything with which you can create images/words. You can create on paper, napkins, concrete, walls, sand, dirt… Dirt? Yes, grab a stick or just use your finger and trace images in the dirt on, say, a soccer field. That way you can get the best of both of worlds I am comparing. Why do people doodle? Why do teenagers doodle on their book covers, students during lectures on their syllabus, people on long phone calls, on to-go menus, people at bars on coasters and napkins. An endless list of doodle where and why to doodle. Doodling Past the Graveyard - Part II I don’t wanna go into the maudlin details of what it’s like to spend a month of your life literally in a bed 95% of the time. Always cold. Having trouble eating. Requiring help with showers and other bathroom duties. My visits for paracentesis and dialysis were fun, much-needed little trips away from my room.
I spent over a month in the hospital having never gone outside. It was a cave. And I had totally forgotten about doodling. Many tests were being run on me over and over and over again. Various procedures were done to figure out just how bad off my liver was. Turns out my kidney was just as bad. I needed to receive a double transplant. Doodling wasn’t exactly on my mind at that point. Later I discovered doodling definitely was still there. I was approved for a double transplant. But, there was a snag. They initially put me on the list near the very top, but then had to take me off because I developed an infection. It took about a week for the infection to subside. And then everything happened pretty darn fast! I was on the list again and within a day a donor was found! The following day I went into surgery. The surgery lasted about nine hours and it took me quite a few days before I was somewhat back to normal. The surgery and everything involved with it took my personal level of weirdness up about five notches. I have always been a funny and weird guy around my friends. They always expect me to do odd little things or make odd proclamations about whatever in the world the topic of conversation in any given moment was. They would’ve been astonished at my level in the hospital. I remember bits and pieces of many things. Most of what I know is from the people around me, including the doctors and nurses. It was funny how they started telling me after several days, “Oh, you seem like you are doing a lot better.” You see, I had crazy dreams that bled over into my waking life in some ways: fishing for the most beautifully grotesque fish on a reality TV show with David Lynch lurking in the shadows, directing the show. One of the nurses being the Incredible Hulk made of shards of glass. Babies being fertilized and raised by computers inside human beings who had to wear mesh metal nets for some weird incubation purposes. I remember these dreams vividly because they happened in real life. Not. That’s how messed up my head was from all of the medications. One doctor came up to me several days after the surgery to check in on me. He said that I had told him that David Lynch had ruined my life. “No! No, he didn’t. He’s one of my artistic heroes. I look up to him. I can’t believe I said that. I didn’t mean that. I swear.” Anybody who knows me understands my reaction. My creative juices (which I already had a bunch of) were flowing like crazy until I/the drugs finally settled down. When I finally shook that trippyness off and became more coherent to others -- as well as to myself -- I realized I was alive thanks to the most generous donor in the world and an amazing hospital full of incredible doctors and nurses and support staff. I had to spend the next nine days in the hospital ensuring it would be okay for me to be released. Many tests again, my diet was monitored, I had to learn how to take a shower sitting down. I was evaluated for my mental and emotional health. And of course, I had to go through physical therapy. Finally, I was released…on…the 21st of September. Ba-dee-ya! Yes, I remember that night well. Doodling Past the Graveyard My third stint in the hospital due to my battle with cirrhosis of the liver vacillated between optimism and utter doom. The nurses were amazing dealing with me; my family and friends were supporting me. I could only really walk with a walker (poorly) and I needed help with regular bodily functions at times. But I tried as often as I could to bring laughter and smiles so wasn’t the kind of patient nurses avoided. Then one day a frustrated doctor told me the only reason I was alive was because of medication and care at the hospital. He wasn’t being mean. He was upset there was rarely any progress with me.
I tried not to let it bring me completely down because there were talks about the possibility of me getting a transplant. One day I did a video call with my cousin Mette in Denmark. She is an artist who paints and does ceramics as well as teaches young people art in school. After I had updated her about my physical and emotional state, we talked about doodling and a personal project I had started before I got quite sick and had my first month-long stay in a hospital about a year before. When I moved to Abilene from Austin knowing I was sick but not what was wrong with me—never having gone to a hospital to check things out—I decided to get back into doodling. I had a big piece that I’d started several months before as a way to practice doodling with all kinds of colored pens. I continued with that piece until it was finished. And then an idea came to me. Why not do collaborative doodles with my friends? I could mail a doodle I had startled to a friend who would add to it and then mail it back to me. The piece would continue back-and-forth in the mail until it was done—two mailings each usually. Many friends were interested, and the doodling and mailing began. The first ones I did with Mette were my favorite because that’s when I realized doodling could involve any media. The ones with her mostly involved painting along with some ink and colored pencils. As long as the idea began spontaneously and the piece grew collaboratively, I didn’t care which media was used. Heck, use it all! Inspiration between two people into the piece of art it was to become, seemingly, on its own almost, is an incredibly fulfilling endeavor. WHAM! I got really sick and dropped the project for the most part until everything rekindled in me that day I was on the phone with Mette. That was during my darkest hours. “You should doodle again. Right now? You can find something. Even a napkin!” Mette exclaimed. “Well. I do have a pen in these blankets somewhere (my body was sickly cold always) and a notebook over to my side that someone could hand to me when I need it.” “Good. You should do it.” As soon as we got off the phone I asked for my notebook and I did my first doodle in the hospital. I had promised her on the phone that whenever I was able to do so, I would mail it to her and she could add to it. I was excited again about doodling. Mette’s words of encouragement during that phone call completely inspired me. I did one more doodle that day before a helicopter came late that night and whisked me away to Fort Worth. I had been approved for an transplant assessment at Baylor Scott and White All Saints Hospital. The doodling would have to wait. My Whole Creative Life Story My first committed true creative outlet came when I was 14 and I just couldn’t stop writing short stories. I read a lot of books of the mystery and horror genres and with all of that input, I needed an outlet for my own imagination. Over the course of about a year I wrote approximately 150 notebook pages worth of short stories.
Although I did take an art class my sophomore year in high school and I’ve always dabbled a little bit in art, writing was my main passion. I worked hard on our high school literary magazine and became one of the chief editors my senior year. By that time I was writing more poetry than short stories. But, I also acted in our plays and in some short video pieces. I really wanted to do it all. In college I continued writing short stories and took classes in short story writing, as well as poetry and screenplays. My attention shifted from writing to wanting to make movies. So, I changed my major, dove in and began writing, directing, acting and editing in my own films. To top it off, I worked on other people‘s films. Beyond college I still made lots of short films and I wrote scripts for my sketch comedy troupe Hoover’s Blanket. I also jumped into improvised (comedy) theater for about eighteen years and performed in over 1000 shows during that time. Improv is an amazing creative outlet and I happened to find myself in a couple of good troupes and duos. These collaborations were accepted into various improv festivals across the country. Confidence Men: Improvised David Mamet was my favorite troupe and we were selected as the best improv troupe in Austin, Texas, for two years straight. In addition to performing, I directed some shows and coached a bunch of troupes. I created and performed in a bunch of beautifully crazy one-off shows. Improv made me a better actor and a better short story writer. Short story writing and video work also helped improve my improv. Improv is interchangeable with just about any other form of creativity. It teaches you to make decisions quickly and perform them in myriad ways. It taps deep into your subconscious to turn up the material you are going to need right now. Then the next moment and then the next moment and the next. It is an art form where you are writer, director, actor, collaborator. and editor. Right now. Yes, go. Do it. Right now! People are watching you! Having to create a story out of a simple suggestion with other people in front of a paying audience is the most blissful kind of nerve-racking energy in the world that I would go through every weekend. Sometimes there were failures and sometimes there were huge successes. But those in-between times you were just doing what you could do with your partners to survive in the moment. In the end, after every show, all of it was scrapped to move on to another show. Totally disposable, totally addictive. Totally a lifesaver for me and many other people. For various reasons the amount of improv I did begin to decrease tremendously. I didn’t even realize how few shows I was doing in comparison to the past. Things in life such as relationships and trying to find work took up more of my time and I was becoming ill without really knowing. My energy was being zapped. I started doodling. I went to a dollar store and bought a bunch of ink pens and poster board and just started drawing. I had always liked drawing when I was growing up but I definitely was not an artist. Not like many of my friends I have known over the years who are tremendous at painting, sculpting, drawing. All of it. In 2019 I moved home to live with my parents. I never went to the doctor to find out what might be wrong with me because I kept thinking it would be something to just pass. But I definitely was not myself in the eyes of those who knew me…I truly realized a couple years after the fact. I couldn’t find work and so I dove into Doodle Art. And then I started sharing doodling with my friends through the mail. I really enjoyed it and started thinking that it might be something I could possibly do for the rest of my life. If I could figure out how to make it into something more than just sharing doodles. In other words, a job of some sort. Income. I started doodling more with friends and family and gradually got more and more sick until one afternoon I was found passed out on my bed with an extremely low blood pressure and was whisked off to the hospital. A couple of days later when I came to, I found out I had cirrhosis of the liver and double pneumonia. Doodling would have to wait. The Pill's the Thing. Or, How I Created Submission Boxes.When I came up with the idea for doodle submission boxes my initial thought was to use cigar boxes like the ones you might see at a garage sale or a kid’s lemonade stand—compact, cute and a bit secretive (to me). What stories lay within those tired old boxes….
Then I realized that although the cigar boxes had mystique they also “reeked” of stinky bars, emphysema and product placement. Plus, the boxes I saw online were either too small or flat. Submitting doodles would involve raising the lid back and, consequently, exposing all the other doodles (eek!) or the lid flying open with possible theft by wind. There had to be a better solution. The doodles needed privacy from thieves and critics. The boxes needed to pop. Zing! Bang! Boom! Sparklers! Confetti-cannon tripwires! Monkeys! I really wanted to make them look beautiful and represent the magic of doodling. But the box…hmm… Pills! Pills were the answer! Well, not exactly pills. The boxes that my medications were mailed to me in. They would be perfect! And they were free! I’d been saving them for months and didn’t know why. Serendipity is why! They are small shoebox size and the lid closes down into the box. I could just cut a hole in the top and carry the box around with no fear of doodles slipping out. I just needed to design them and create them. Here’s how I make them: first I strip them free of packing tape and spray paint them metallic silver. The boxes need to “pop” so I decorate them with doodle submissions. I photocopy several submitted doodles onto bright yellow card stock, cut them out and glue them onto the box. Then I make a laminated back and attach it to the box with velcro strips. The boxes display the various types of doodles people do: faces, animals, creatures, scenery, moments, still life, words, designs, or any combination of these. And I’m amazed by all of the variations in style and levels of skills. I want to display every type of doodle in the hopes one or more will inspire somebody else to submit a doodle or two. Every three boxes or so I use new doodles as a way to honor those who submitted. You can’t have doodles without supplies. So, I put together pencil bags that include sticky notes, information cards, & writing utensils and place them in binders with a laminated FAQ sheet inside. Five coffee shops in Abilene, Texas, agreed to take my submission boxes. The awesome news is that they work! Sometimes the pickings are slim and sometimes bountiful. We are grateful for any we get. Thank you! |
MY LIFEI've been a creator all my life. This page will document how I've come from a boy with magical dreams at night to an adult child at heart with those dreams now on paper. Archives
January 2023
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